As many of you know every week I write something hopefully useful to each of you regarding Interstitial Cystitis. Typically I only post things I know or things that are in article form. This week something came accross my desk that is neither of those two exactly, but because it encapsulates familiar stories of other kinds of medications (not just the one mentioned here) I thought I should bring it to the attention of the ICAMA readers. I sit and listen to story after story of how each person that I treat came down with IC. Or at least my own interpretation of how it happened. And, it is never one thing exactly. Things that I refer to as precipitating Factors must be in place prior to what I refer to as the Trigger Factor becomes the preverbial straw that breaks the camel's back. It is very sad when you hear these stories because the warning signs were there, but no one knew how to read them. It is especially sad when you hear about a child falling through these kinds of cracks. I met one this week, obiously not my first, but, it makes me just as sad. A child should not know what a bladder is. Children should not be thinking of those things.
I am posting this article today because it appears to be one very young woman's sincere way of reaching out to others to share her story and do something positive with it to prevent others from having the same tragic thing happen to them. I applaud her for her proactive and positivity. This is an oustanding way of being part of the solution. I hope that she finds her way to health and that she succeeds in imparting her experience to the public in a way that actually helps stop this kind of thing from happening in the future. If nothing else, maybe it will help people read the signs when the come--enable them to read those signs. This is a hearfelt story. Please read it!
- mbrizman's blog
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If u click on 'areneectc' (highlighted in blue) at the top of the post, it takes u to medications.com which seems to be a discussion on medication side-effects.
Gardisil sounds so familiar to me but I forget what it is ? Is this for the HPV virus?
thanks for posting!!
I looked Gardisil up on line, and there are a lot of side effects listed, IC not being one of them of course. It also says that Gardisil might not protect everyone, and they aren't even sure how long the protection lasts. An annual exam is still recommended. You have to wonder if the benefits outweigh the risks. Doctors seem to push drugs without knowing or caring about the harm they might produce. This lady is one sad case. I wonder how many more there are. AND as for oxycontin, that stuff is over prescribed and addiction is almost a certainty.
Truly this scares me so bad! How terrible!Matia -I wonder if its possible if you get IC from something like this if you can remove the vaccine from your body? Is it in you forever? I don't know if this somehow was my straw but I had received vaccinations for hepatitus B? I think? for a job requirement and I had only recived 1 or 2 out of the 3 shots.I never got the last shot- I didn't take the job and ended up moving but pretty soon after that is when my bladder and kidney issues developed? I sometimes wonder if that an impact on my Ic development. If so does that mean that my body is altered nagatively for life? I hope she gets help and answers. there is sooo much pressure and acceptance for vaccines and I feel like they are potentially really harmful. How can you prove that they are harmful? I think the vaccine companies would say- how can you say we caused your IC? This is so disturbing to me. They run the commercials for Gardasil constantly!
Mary
I rec'd this post from a firend who participates on a parent site in LA called Peachhead. This is all I know about the post, it was passed on to me through an email. As for vaccines causing IC: That is not the only point. Not all vaccines cause IC. It does seem that that is what this one did for this particular woman. I have listened to many stories about many different drugs having played a part in the creation of IC. Drugs such as antibiotics, antifungals, vaccines, birth control pills, drugs t that alter hormones in other ways, NSAIDS (ibuprofen, etc...). The damage caused by these drugs is a part of what we are dealing with in treating IC. This is not something that you get out of your body, but a condition in the body that now must be contended with and changed. The body is thrown completely out of balance once IC has set in and getting the body back in balance and restoring its previously healthy state is the job of the practitioner helping patients with chronic disease.
Yes, for HPV virus!