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Does anyone know whether the treatment is meant to make you completely asymptomatic or whether you'd still have flares? I was completely asymptomatic for years but nevertheless had 'flares' lasting between hours and days several times per year. Do ex-patients have this profile or are they completely asymptomatic from the disease?
Most who stick with it are asymptomatic when they are done! I am almost there! This has been my best month ever, most days I do not feel my bladder at all and if I do it is very light discomfort and it goes away within a few hours.
I think as long as I try to stay away from sugar and not eat anything artificial, eat veggies with most meals, stay away from unnatural foods and products etc. I think with daily probiotics I will stay asymptomatic. I think if you go back to living an unhealthy life style you can have the IC return.
Christine, I am so happy to hear that you've had such a good month and are often feeling asymptomatic! I think you started treatment a little before I did and it's just such a positive thing to read about someone's success in a (relatively) short amount of time. I hope it continues for you and you'll be good as new in no time!
Hey there, interesting question! So delighted you're feeling so well Christine, that's marvellous. I've had a bumpier couple of weeks for some reason, with more external soreness and spots of faint urge here and there (my only real remaining symptoms) - made me realise how stable I was over Christmas! So, lovely to hear you're doing so well, and good to hear, too, that Dr B envisages asymptomaticness (a word? maybe ...) at the end of treatment for those who stick with it! have my appt tonight, which I'm looking forward to. Happy Valentine's day, everybody!
Most who stick with it are
Most who stick with it are asymptomatic when they are done! I am almost there! This has been my best month ever, most days I do not feel my bladder at all and if I do it is very light discomfort and it goes away within a few hours.
Christine- that's fantastic...
Will you be asymptomatic 'forever' more, ie, within certain remit (like no sugar, etc.) or do you expect to have
I think as long as I try to
I think as long as I try to stay away from sugar and not eat anything artificial, eat veggies with most meals, stay away from unnatural foods and products etc. I think with daily probiotics I will stay asymptomatic. I think if you go back to living an unhealthy life style you can have the IC return.
I am sure you will!!! Soon
I am sure you will!!! Soon you'll be adding your success story!
excited for you!
Christine, I am so happy to hear that you've had such a good month and are often feeling asymptomatic! I think you started treatment a little before I did and it's just such a positive thing to read about someone's success in a (relatively) short amount of time. I hope it continues for you and you'll be good as new in no time!
Good question. I was
Good question. I was wondering about it, too.
Hey there, interesting
Hey there, interesting question! So delighted you're feeling so well Christine, that's marvellous. I've had a bumpier couple of weeks for some reason, with more external soreness and spots of faint urge here and there (my only real remaining symptoms) - made me realise how stable I was over Christmas! So, lovely to hear you're doing so well, and good to hear, too, that Dr B envisages asymptomaticness (a word? maybe ...) at the end of treatment for those who stick with it! have my appt tonight, which I'm looking forward to. Happy Valentine's day, everybody!