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I actually wrote a different post but it seems to be linking to a previous one (perhaps as they have the same title?)
I have a first appointment with Dr Boaz in two weeks and I'd have to fly over from the uk. Right now I have terrible perineal pain and burning, on the top of servere IC , pfd, emf sensitivity, amenorreah and pcos. I'm not sure what to do. I can't eat more than five foods most of which aren't on list one. According to my naturopath the pain in my perineum is gut inflammation and that's why it gets worse when I eat. I can barely sit and can't imagine being stuck like this for months and months while I try and heal. The pain is incredible and I can't really eat any carbs so I don't know what will happen. I'm not sure if I can fly from the uk with all this, let alone wait months and months for some relief From this pain. I'm sorry for the nature of this post but I just don't know what to do.
Katie, this is so difficult I
Katie, this is so difficult I know. I didn't have to fly to see Dr.B, but I did have to fly to China to adopt our baby girl. I was in so much pain two nights before we flew, I fairly spent the whole night in the tub sobbing when I would run the hot water to try to stop the pain. I hadn't seen Dr, B yet, so I was managing on my own with an anti Candida and gluten free diet. I did end up having pain on the plane and spent the night swigging water standing by the bathrooms to try to flush my system. By the grace of God I had no pain the two weeks we were in China getting our baby girl. The pain resumed full force the first night we landed. I didn't learn about Dr.B for another year. At that point I had trouble riding long distances in a car, but I learned about Dr.B from a gal who shared online how she had come all the way from the UK and said do whatever you have to get there because she never regretted her decision and was doing so much better. So my friend drove me the 3 1/2 hours and I am so thankful I went. I will pray for you Katie. I know how difficult this is getting on a long plane ride in pain.
Can you have chicken? A soothing soup for my gut is to take some chopped zucchini and celery and saute a bit. Then add chopped chicken breast. Pour some water over with a bit of salt and olive oil (plain not extra virgin). Simmer for an hour or so. You can put this in the food processor to puree for even better digestion. You can also make this soup similar with fish but not cook as long. Leave out any veggie you can't tolerate and put in what you can.
Lots of love to you. Xxoo
Thank you Mrs A. I've tried
Thank you Mrs A. I've tried those kind if soups and cause I don't do well with histamine they make me worse at the moment (though they used to help a lot and it's lovely advice.) I just can't imagine how I can recover from this. It's all been so much worse since I took antibiotics at Christmas. I don't know if i can wait years to be able to function.
It's one step at a time, and
It's one step at a time, and you are going in the right direction. I remember the incredible relief of finally having someone help me who could sort out the twists and turns of this condition. I know how exhaustive it is. My daughter has IC too, so we are both very grateful we got the help we needed to become stable again. It hasn't been easy, you fight to get your health back. It does take
time to heal. But it is so worth the perseverance and patience. I am allergic to the nightshades with very painful reactions. I cannot eat dairy or grains at this time either. But I hope to one day as I continue to heal. Your body can heal again, I didn't think I could either but even my arthritis is nonexistent at present when it used to hurt so much.
Katie- Mrs A has such good
Katie- Mrs A has such good advice-Don't assume you will have to wait years!!!! Just try to keep yourself taking one step at a time. One day at a time. get through each hour and then you are closer to your goals.We are here to support you. You can do this. ((((HUG)))))
Katie, I think we all greatly
Katie, I think we all greatly feared that plane ride but you can do this and it will be so worth it!!!! I will be praying for you as well!!!
Thanks Headley.Patty, it's
Thanks Headley.Patty, it's just this pelvic inflammation my whole pelvis burns right into my thighs and gluteS It's like a fire whenever my skin touches a surface bit inside my muscles. I can't imagine how Much inflammation there is but sitting is almost impossible right now So ill have to take painkillers for the journey. I had a look through the forum but I couldn't see anyone else with this problem which scares me a lot. Physiotherapy used to help but now it's stopped working. Are you in the uk? I'm thinking of fasting to try and reduce some inflammation in my pelvis to help with the plane journey if I think I can make it. I'm also not sure how long I can wait for the herbs to work as right now I've been put on morphine.
I still have some of these
I still have some of these symptoms you describe but not at all to the level you describe. I do believe mine is things get stuck when the lymph is trying to cleanse. I am so sorry for your pain. I live in the US so my trip was only about 4 hours. You might have to do whatever you feel is necessary to get out there. My cutting out all carbs actually made my pain worse. The Icama diet improved mine. I just met a lady yesterday at a bible study who has IC and they actually removed her bladder. She has to use a catheter to relieve herself and has almost died several times from the bacteria this causes. Just more validation to me that the Brizman's are the answer. The inhamane procedures that never work just make me so very sad for these women. Katie, Deir and Mrs. A give great advice. One moment at a time. If you can just keep telling yourself you are going to get the help you need. We all know how difficult that is but try. Hugs!!!
Dear Katie,
Dear Katie,
Im so sorry for all that you're dealing with right now. I am also so impressed that you're taking this leap of faith, still fighting for a better tomorrow. I want to tell you that I believe in that tomorrow - for all of us. I know that over the years that I've hung out here, slowly, but surely all the pain and fear that you are understandable showing, for almost everyone that I can recall, has faded and been replaced by a newcombers voice, such as yours, reaching out in that same manner. I too was so scared and desperate, and quite posibly owe my life to those that came before me. Please find your way here, reach out as much as you need, and know that someday you'll have the opportunity to thank the people that came before you, by helping those that will need your new found strength.
To better days,
Denise
Denise, That comment brought
Denise, That comment brought tears to eyes. Thank you x
Beautifully said Denise!!!
Beautifully said Denise!!!
Thanks guys,
Thanks guys,
feeling a bit vulnerable myself right now - waiting for non-related IC test results - will have them on Wednesday - trying to remember that the days in between still count - they will be what I make them - right now they seem to be a huge pity party -helps to write.
Hoping for good results for
Hoping for good results for you Denise.