The Flare that Will Not End

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I have written about this a couple of times, but I've now been in a flare for 4 weeks. I've been in treatment for one year. And I was doing so well. But then I had a TERRIBLE, heavy 21-day period in late October. Still, my bladder held up really well as I battled severe anemia. My anemia is now under control and I'm having such a bad flare. It's been a little better the last four or five days. Boaz said it could be because my body was so weakened because of the anemia. I'm just so frustrated. I don't know. I just feel like I've worked so hard and spent tons of money and here I am a year later -- miserable. Right where I started. And Boaz kind of sort of thinks he might know why. But not really. So discouraging. I guess there's no question here. Just needed to vent a little to others who understand. 

DLFox123's picture
DLFox123

Hi Melinda - it sucks.  Please know that I've heard other people who go through this and then, slowly, but surely get better.

Take Care,

Denise

Claire's picture
Claire

Thinking of you Melinda!  This has happened to me and it is awful, but stay the course and you will get through it.  Come up with coping mechanisms that work for you and try to breathe.  It WILL change and end with time - in the meantime, reach out for support and know that others understand and you're not alone. xxxxxx