Anxiety

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Anxiety is very prevalent in and takes many forms with IC. A common scenario with IC is a person having fear around changing what he or she is doing for her condition at the onset of treatment. Many times he or she has a bag full of supplements, and even though the sum of those supplements are not working, there is tremendous fear and making changes. Another fear is taking something that someone has associated with pain. OFten it isnt what you take it is how and with what. Combining and recombining is very important in the treatment of IC. This can make the difference between feeling well and feeling awful. Also, making appropriate dietary changes and water changes along side these protocols is paramount, otherwise, it wont work. The way in which a supplement is processed is another important factor to understand. So, if someone has a problem with one probiotic, it is important not to throw the baby out with the bath water. There is more to it than what seems obvious.

Another fear is that you will be the only person that will not benefit from treatment. I don't think I have ever seen one person who did not have this fear. I hear it time and time again. 

Through treatment,  it is difficult to understand how changes in the body can take time and why things move so slowly. And, that provokes more fear and a lot of impatience. Many times, people will drop out of treatment during these times, or turn to other things that may complicate matters. I think, personally , it is better to focus the treatment instead of including multiple efforts. That often only leads to more problems. I think the body does better when it has been given less signals.

Other fears include things like, being afraid of never being able to have sex again, or of not being able to be alone, or, not being able to find a bathroom in time so simple daily travels are avoided. More complicated travels such as airplane rides or cruises are avoided. Social anxiety often plays into the common anxiety factors of IC as well.

In many cases anxiety hits every evening. This is common amongst those having IC, but also other chronic conditions as well.

As a person's IC symptoms start to improve, these anxiety factors reduce. However, one must take that first step in order to get to a place where things seem more manageable and calm.
 
As one goes through the many steps it takes to regain a healthy balance in one's life, one will more often than not see how his or her anxiety will slowly reduce over time and life becomes about life not about anxiety!

I hope this helps shed some perspective on the subject.

Dr. B 

Comments

IC-Hope's picture
IC-Hope

It helps to hear you say that these fears are universal.  Even with all my gains, every time the pain comes back again and it feels like my bladder's not progressing much, all these fears creep back in and it's hard not to go to "that place."  And the fears feed the impatience in kind of a vicious circle... if you feel you aren't getting much better you get more impatient or set timeline expectations like "by one year I should be at this point," and then of course are disappointed.  Now, I know all these things but in the moment stuck in the emotion I forget/disregard how long it took for illness/imbalance to develop.  Or I look at others and can't understand why I am so much weaker, how it could take so long to fix me while others with similar physical & psychological pasts go on destroying their bodies in various ways and seem just fine (I know 'seem' is the operative word).
So a special thank you for not judging us even for our impatience, as you're doing so much to get us well I could imagine impatience might be hard to listen to sometimes.  Yes, impatience is natural, but it also frustrates me because that path leads away from clarity and gratitude.  In my clearer moments I keep reminding myself that I'm one of the lucky ones, that I've found you and have an actual chance at healing from IC, the "incurable" illness.  And even if I only got 50% better, that would be a huge blessing too.  How dare I be impatient?  How dare I feel that existence "owes" me something, no matter how good of a person I may be?  That brings up one of my favorite quotes by the mystic Osho -- "So much has been given to you... Existence goes on pouring so much over you that to ask for more is just ugly."  (Caveat- I don't think he intended this for those in serious suffering but) for those in my state, who are better but still have a way to go, and who are so focused on what we "deserve," where we "should" be at this point and all the things that still haven't improved (enough), it puts me in my place.  I expected to learn & grow a lot from this IC experience, as those who came before me alluded to, but one of the biggest surprise lessons has been humility.  The other surprise lesson I learned was not from you overtly trying to teach anything but simply from you living by example -- your incredible non-judgment of us, whether people get impatient or cheat on the diet or choose other treatments.  Your example of non-judgment continues to be a powerful lesson for me and extends to all areas of my life.
 

drbrizman's picture
drbrizman

This was such a powerful post. Thank you so much for taking the time to write it and for the incredible kindnesses regarding your feelings towards me. I am honored by your thoughts.My own journey through life has been filled with the lessons of humility as well, and I have taken all of those to heart and try very hard never to break that agreement between me and the universe.Again, thank you for sharing your thoughts and struggles. It is good for others to here all sides of the situation from many different individuals with many different points of view. 

Melanie's picture
Melanie

Lisa, I just had to say and reiterate what Matia said.....Wow, what an amazing post.  Truly, truly inspiring.  It really really moved me, and ....I SO related to everything you said.  I have been with Matia for six months and was progressing well, and then last month I had a bad month and I let myself get discouraged.   It is funny, you start to feel better and then you think you can have a bit of this or a bit of that and be okay.  Well, I definitely learned my lesson.  And I thank God every day for Matia, and for friends like you on this site that help all of us keep going!  I read a lot of the posts, but don't usually post much myself, but in this case I just had to let you know how newly encouraged I felt after reading your post.  God Bless!