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Hello ladies,
Has anyone had experience or know of any family relatives who, when kids (perhaps even their own kids) showed some urinary symptoms which turned out NOT to be IC? My twelve year old daughter has had episodes of stinging/burning urethra when she has not drunk enough and/or when it's a hot an sweaty day. She also had a bout of frequency a couple of years ago lasting a few days, and two UTIs when a child. I am terrified, as you all can imagine, that she is heading down the same road. Her bowels seems to be fine and is healthy in every other way. Any thoughts much appreciated (btw, I am bringing her to see Dr B anyway).
Hi Vin, Yes, I know of many
Hi Vin, Yes, I know of many girls/women who have a UTI here and there- some frequency and they DO NOT have IC. If your daughter is 12, she may always be going through lots of hormonal changes, which we all know can make you a little more sensitive in your bladder/urethra- even when you do not have IC. I am sure it couldn't hurt to take her to Dr.B and start her on probiotics as a preventive measure....sounds like you are a great mom;)
Katie
Thanks Fahlmank, Have you
Thanks Fahlmank,
Have you ever noticed any urinary symptoms with your own daughters? I think what worries me is that my daughter has had episodes going back two/three years of urethral stinging, or so she tells me now - usually to do with lack of water, or so she thinks. This terrifies me as she is having symptoms even earlier than I did (I had a few 'bouts') as a kid.
Hi Vin, Neither of my
Hi Vin, Neither of my daughters have had UTIs before. My oldest, 8, does have some skin issues... not really eczema, but excessively dry. I, too, think that once I am a bit further along in treatment, I will figure out a way to have her under Matia's care as well.
I completely understand the worry... being a mom is not easy;)
Katie
I totally understand your
I totally understand your fear. My 8 yr old just recently stopped wetting at night and it truly filled me with dread. I was always comforted by this woman i knew whose son wet until he was 14 and is now a grown strong healthy guy....however i found out this woman has IC!!!!! I nearly fell over when she told me that. ANyway- I do think in my dson's case- it is dues to deep sleep and immaturity of teh system because he has completely stopped. Thank god. I worry often about my daughter because she is so tiny and her dr thinks she may have some leaky gut issues.
At this point I am trying the best I can to feed them healthy, give them probiotics and they also take cod liver oil and butter oil. If I can raise the necessary funds I would like to take the baby to see Dr Brizman. I also have to believe that there is only so much I can do and i am doing it!
It sounds liek the burning your daughter has is totally related to not drinking enough. I wouldn't worry. (well- yes I would- but I'm nuts!!! LOL)
your daughter
Hi Vin43,
Here's my 2 cents from my conversations with Matia and my experiences. I had bladder issues as a tiny kid (under 5) and my mom was the most health conscious mother I know, so I was well fed as a kid. I had several episodes before becoming a teenager in which my bladder hurt and stung and I was told by doctors that I didn't have a bladder infection. If I drank a lot of water and rested, the feeling would pass. Does this mean I was destined for IC? I don't think so, but it did mean that my bladder is a weak organ in my body that is easily affected. Dr. B thinks that I got IC because I had such a long history of disordered eating followed a diet with a good amount sugars and carbs and stress.
I wish I could go back and tell that girl that I was then to love herself and feed herself with healthy food, I think it would have made a big difference. I hope your daughter is able to do those things for herself and I bet she'll be fine. It's good she has you for a mother looking out for her!
Best wishes,
Claire
my two yr old is on
my two yr old is on antibiotics again due to her ear infection. she's been having a fever since monday. we took her to urgent ped. care the following night and we thought she'll be getting better soon until last night, she seemed like she was getting worse. i took her in this morning and at the waiting area, i kept on pointing to my crutch asking sophia if it was hurting. i was so happy despite her high fever. this is how much i'm traumatized by ic. a different doc saw her and said she was on a different antibiotics. so here we are back to square one. after one dose today, she seems like she's gaining herself, yay! this week has been so stressful on me. it is bad enough i'm trying to take care of myself and here is my two yr old crying wanting me to hold her for couple of hrs.
Junie,
my two year old kept getting ear infections and then on antibiotics when we brought her home from China. Our doctor was an old country doctor just about ready to retire. I am still so thankful for his advice. He told me to take her off all regular dairy products and to put her on raw goats milk. She has not had an ear infection since we did. I know it is so difficult to have IC and a sick child. You are such a wonderful mom.
Wow! I have heard lots of
Wow! I have heard lots of good things about raw milk in general. Do you drink it in your family? We tend not to drink milk in my house, but I have heard so many great things about raw milk that I am becoming curious;)
Did you join a co-op to purchase it?
Raw Goats Milk
is something we have used in our family for a long time. My kids used to milk our goats as they were growing up, but they didn't want to drink the milk, so I used it in my baked goods and made cheese with it. I really didn't do it primarily for our health at the time, but rather to save money on food and help my kids learn some animal husbandry. (Plus the goats kept our field mowed.) Now four of my kids are grown up and our last two goats are dry, so I am purchasing goat milk from a gal in our town. I never realized that goats milk had all these great qualities, and when I told Dr. B on our last appointment that I was giving our little two year old goats milk, she said that was excellent. I am constantly learning!
Junie- i hope things are
Junie- i hope things are calming down. it's incredibly tough to take care of sick kids and have IC at the same time.
If you have some time to research- there is a bunch of alternatives out there regarding antibiotics and ear infections. I've personally used homeopathics and chiropractic to avoid antibiotics. Mrs A is right on about dairy. You'll find a lot about that too.
(((((((hug))))))))
Junie, if I were you I'd
Junie, if I were you I'd consider putting tubes in. It is a simple surgery that will most likely keep your daughter away from antibiotics, which we all know are very damaging. We put tubes in my daughter ears after endless ear infections and rounds of antibiotics, and I could not be happier. I had to bring the surgery up with pediatrician and even pushed for it. The pediatrician was happy to keep prescribing antibiotics.
tubes
Blondy, I respectfully disagree. Tubes have time and time again not been shown in clinical trials to have any effect on ear infections. I would also like to note, that mine fell into my ear canal and caused massive damage to them. They didnt help at all, and I developed cholesteotomas in both ears.
I highly recommend something like what Mrs A said, or taking your daughter to Matia. My ear problems are highly related to the IC I developed later in my life.
Wow- that is really
Wow- that is really interesting. Did the tubes literally help contribute to IC or was it the infections/treatment? Or the very conditions that existed to allow ear infections that led to the IC?
Junie- if you want to email me- I can point you in the direction of a couple of books and sites to look at regarding kids/alternatives to antibiotics.
deirfinnegan@gmail.com
no no
The tubes just didn't work and I continued to have more infections, and lack of drainiage etc. What I meant by highly related is that the IC that I have is the opposite end of the underlying issue that caused the ear problems I had as a kid.
Its weird--studying research design and undergoing this treatment makes me look at all this stuff so differently. Its scary how little interaction there is between research and practitioners. See the below link (although, I usually think the NYT does a poor job of covering research), this is just an example.
http://www.nytimes.com/2006/08/15/health/15brody.html?pagewanted=all
More confused....about kids and IC
Dear all,
To ask another question re the above, I have been questioning my husband and family members about bladder-related signs and symptoms. My husband states that he, as a kid and even now, has episodes of urethral stinging. He remembers a male friend who, one night, had lots of bladder frequency. My husband remembers his sister and mother having to go to the loo every hour when they were travelling in a car somewhere (on a trip, or something). I have noticed that his sister does go to the loo frequently - she has never had a bladder infection in her life though. They do not have IC (his mum definitely doesn't). My mum has developed frequency recently. None of these symptoms seem to have amounted to anything. Now, my question is - what is IC? We are told that it's bladder sensitivity, frequency, etc.. but I KNOW, for example, that my husband's mother definitely does not have IC and yet has exhibited IC-type behaviour at times in her life (as have these other people). What differentiates us from them?????
My point here is that...
if 'regular' people (people I've never equated with having bladder problems) have or can have 'sensitive' bladders, then is what they have IC or not? Is a sensitive bladder lining which makes my husband's sister run to the loo every hour (I assume that that is the reason why she'd need to go so often - 'cos of sensitivity of lining) or one that stings when someone urinates the same as IC? Is IC a continuum or a discrete disease state? Any thoughts or indeed any thoughts from conversations with DR. B would be much appreciated.
Any thoughts anyone,
...or anything to add from Dr. B.'s insights?
Researchnerd, I don't doubt
Researchnerd, I don't doubt your data. You are probably right. I made my decision based on what little information I had, provided by the doctor, of course. Back then, I took everything doctors told me for granted.
What I was trying to say to Junie is to try anything other then antibiotics for her little daughter; anything that would work just as well, especially knowing side effects and long term effects of antibiotics...