This is month 5 of treatment with Boaz for me and have never had a break in the pain since IC began. I'm not sure if this is a never ending flare or what. Anyone else have the same torture but eventually got relief? I'm struggling and need some advice. Some of you responded in our Facebook group but wanted to post on ICAMA as well:)

Hi everyone,

I'm a relatively new patient/newcomer to this website, and although I check it daily for new forum topics (viewing them whenever I do), I rarely post any comments myself because the topics are usually questions I'm not qualified to answer (at least yet, being so new to this treatment!). When the forum seems quiet, it makes me feel a bit sad and lonely... Then I started wondering if maybe there are a whole lot of patients like myself who check this website/forum frequently for a sense of "community" (or just not being alone) but don't necessarily post anything.

I can't believe I am still here sking these questins but whatever- it is what it is!

I understand that too much peroxide is bad for us but even the natural blonde dyes contain it. If I was to get partial foil highlights, I can't see why this would be a big issue. Does someone have a clear reason other than "Don't get highlights"

Dear all,

Hi all

Hi guys. I'm kind of apprehensive to post this here because I know the chance of response is low.. or at least the chance of relatability is low.. but I'll take the risk. I'm wondering if anyone else has had their IC literally shift from their bladder to another body part. I'm not talking about other areas acting up. I'm talking shift further into treatment. I'm almost 3 years into treatment.. my bladder has been well for several months. In the last couple of months, I've had ear problems.. started out as one thing and then shifted into something completely different...

Hello there,

Hey all,

due to the fact that Electic has stopped making their Rhodiola, Paradise Rhodiola was what I was told to take.  Has anyone else had to do this?  If so, have you noticed any stomach distress with it?  All of a sudden I have gas, heart-burn, and some stomach pain.

Thanks for any input

Denise

I am traveling to Europe tomorrow and wanted to pack some of the medicine Dr Brizman suggested we keep on hand for flus and colds. II obviously can't pack it all and have not been sick with either since I've been on her protocol. I did invest in the remedies tho. Could anyone suggest the most important things to bring for emergencies when traveling? I know one can easily pick up a bug while on an airplane and want to be prepared while far from home. Thanks for any suggestions. :))   Sue

Besides my over use of antibiotics/ Pill in my early 20's over about a 2 year period, I fit NONE of the variables she mentioned for long cases. I suppose mine comes down to mystery. SO frustrating. I just don't understand. :(