I have had IC/Vulvadynia that was triggered by a hysterectomy at the end of 2012 and have been in treatment since September 2013, I can no longer work at the moment and  lost nearly a stone in weight, I have put on 4 pounds, which may not seem a lot but has made a huge difference. Before treatment I was confined to my bed, but never gave up hope that I would get better. My diet is limited and although I do sometimes throw myself a pity party for things I cannot eat, I am so thankfull that this treatment has helped me.  Never lose hope. Even if you are struggling with pain. Yes there are days or weeks when my treatment does not help, but I continue to thirve on a positive attitude, which I was unable to do before treatnent as I lived in constant fear and anxiety. I have also started going to a light exercise/dance class, this has helped my stamina and my muscle loss and given me a feeling of wellbeing.

This has been the most difficult challenge of my life so far - and I needed help in that healing process. The journey has been rocky, but the rewards are unexpected, meeting amazing people who have an inner strength to cope on a daily basis. There is a reason for everything.  I find comfort in believing that.