I have IC, IBS and pelvic uneasiness diagnosis from like 3 yrs. My IC symptoms are mild but pelvic discomfort & bloating is too much, enduring constant stretch in inside muscles & tissues . I have tried almost all urology and PT sessions but to no help. Right now I can’t sit without pelvic uneasiness so had to quit my work & now edge of loosing marital relation.

Dear Forum Members

For those of you that are further along in your healing path, could you tell me what improved first? Also, if you know what caused your

IC, could you list it? I am studying chinese medicine and the information is helpful.

Thank you.

Bonnie

After a year of having this disease and feeling absolutely hopeless, depressed, and being scared, so scared, i would never get my life or my health back, I finally found hope on this website. I have a one year old and a three year old, I had lost hope that i could be the mummy i want to be and that I would never see the light at the end of this dark dark tunnel, now i can see a glimmer :) only problem that the glimmer is in LA and i live in australia, but you make your own destiny and im about to make mine by moving heaven and earth to get to Dr B and begin treatment.

Hey, I was wondering if anyone else has run into a problem I have with eating out. I miss eating out with friends which I am sure everyone else does too! I have started to just make my food and bring it along with me and also bring my Arrowhead spring water of course ;). Has anyone else run into the problem of the restraunt telling you that you can't have the water bottle inside beause they are afraid it is alcohol or that you can't bring your food with you? I just tell them I have a lot of allergies and a medical condition...it usually works.

I was doing so well emotionally for months. Only having brief periods of fear, grumpiness but always able to pull out of it and live pretty darn positively.IN fact I was feeling like i was almost having a spiritual awakening and actually happier in many ways than I had ever been.But for the past few days- I have been a wreck.

Hi there, im trying to find out how to make an appointment with Dr Brizman, ive messaged the admin here and there is no reply, was hoping someone could help me? 

Hi All:

It has been quiet on the forum of late and I am hoping that I can entice some of you that are further along to write some positive posts.

I am 3 months (started 2/24/12 on list 3 but got put back on List 2 3 weeks ago)into treatment and woke up today feeling very foggy in my head and generally unwell. When I get like this, I cannot remember that 2 days earlier I was feeling confident that I was getting better.

Then I get very busy trying to figure out "causes", today's being that I am finally phasing out of HRT entirely and my body may be noticing.

Ok, I am still in a lot of pain, BUT yesterday and today I have had a lot of discharge coming out...nasty thing! 

I guess it is die off....after 3 weeks of treatment! 

It is ofcourse not the things I would yey for, I would more than anything for my nerve pain in sacrum, butt and vagina to settle... But that is still there...

But still, happy for the die off effect! 

I have just stumbled upon this site and would really love to get in contact with dr Brizman, the only problem being that I live in australia and wont be able to visit her in person. Can i email her, how do i find her email address? please somebody help i have to get better from this horrible disease!

Okay so I've become obsessive with tracking people and sifting through old posts. Is there anyone out there whose done the same?! I really need to stop as its adding to my anxiety about starting treatment quite a bit. It seems like I'll try to track someone and they post and post about feeling awful and being in treatment for awhile but still struggling, then all of a sudden poof they disappear off of the forum. It's kinda scary to see this pattern! I wonder where they are now and how they're doing.. Or do I really want to know? Hmmm.