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Hello all!
I just sent in my patient submission form to see Dr.B and am really psyched as I think this may help me piece some things together!
I am 28/female, from the D.C area and have been dealing with IC on and off for 9 years . I've had a couple of good months, even a year or two in remission controlling things through diet, supplements, and ( I don't know, magic....? somehow healing my stomach myself through a very restricted diet, but this time I am in search of someone who can be with me in this healing process.
For the last 10 years or so (around the time my IBS and UTI's started) I've had jaw issues.. my main issue is a loud cracking sound when closing my mouth after yawning. My eyes also water when I wake up in the mornings (I read somewhere that this is TMJ related)
Does anyone else have this and is this something that resolves during treatment?
I would like more info on the healing process from any of you who are further into the treatment.
I have had a couple of days in which my bladder felt almost normal. But they are far and few between. I am always hopeful that I am out of the woods and then the frequency comes back. I have read that it is very up and down but I would like to know what your experience was, Did good days just keep getting longer and better?
dont know if y'all have found annie's blog yet "Berry Local" (she's a patient). it has good recipes. i love this pie crust! i use the white spelt from Daisy Flour (you can order it online), and then i use it for a breakfast pastry. it is so flaky and awesome. im on list 2, and have been for almost a year, and i swear, it tastes sweet.
Thanks for any thoughts. Pressure and frequency are by far my worst symptoms. It varies from 3x per hour, to once an hour. In the afternoon, several hours after lunch I can go 1.5 hours without peeing, but I usually feel like I need to go after about an hour. It is SO CRAZY MAKING, and of course makes me feel like I am not progressing. For now I am lucky that I am sleeping 6-8 hours straight at night! But during the day it is horrible. Nothing I do with my diet seems to make much of a difference.
So Dr B added in 1/4 capsule bifido twice a day to my doses 1 week ago. I was doing pretty good until tonight. I got really sick with flu like stuff lastnight but I don't think it's die off because my baby is also sick with same symptoms. Then tonight that stupid (yes stupid) pressure on my bladder and feeling like I need to just sit on the potty has come back. It's so frustrating. I could use some encouraging words to get me thru. Ugh will this ever end?
Thanks for all your encouragement, just wanted to let you know that I've booked my appointment for the 5th December. Am flying across from the UK with Virgin a few days before giving me a chance to explore LA and have a little holiday. Hopefully I won't be in a flare up and can enjoy it. I'm planning to stay in a youth hostel to keep the costs down but I think it might be fun, I'll buy some earplugs! :)